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CD2H: Harmonizing the Informatics Community

The National Center for Data to Health (CD2H) accelerates advancements in informatics by using findable, accessible, interoperable, and reusable (FAIR) principles to promote collaboration across the Clinical and Translational Science Awards (CTSA) Program community. CD2H tools and resources make it simple and valuable for CTSA Program members to get engaged, connect with peers, and contribute. By promoting collaboration, CD2H fosters a robust translational science informatics ecosystem that collectively develops solutions to solve clinical problems faster, more efficiently, and more effectively. CTSA Program members are poised to lead this charge by harnessing collective expertise and strengths to solve key informatics challenges. With this team science approach, advancements in translational research can ultimately improve patient care.

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The National COVID Cohort Collaborative (N3C) is a complementary and synergistic partnership among the CD2H, the CTSA Program hubs, distributed clinical data networks (PCORnet, OHDSI, ACT, TriNetX), and other partner organizations, with overall stewardship by NIH’s National Center for Advancing Translational Sciences. The N3C aims to improve the efficiency and accessibility of analyses using a very large row-level (patient-level) COVID-19 clinical dataset and demonstrate a novel approach for collaborative pandemic data sharing. N3C is a demonstration of how a very large, high-level informatics project can be incorporated as a part of CD2H.

News

Call for Submissions: AMIA/HL7 FHIR Applications Competition - Deadline August 2, 2021

AMIA and HL7 are partnering again to bring an exciting application competition to the AMIA 2021 Annual Symposium, October 30 – November 3, in San Diego. Deadline for App Competition Submission Aug 2, 2021.

Published: Jun 14, 2021

BioCatalyst Platform Demonstration

The CD2H Biobank Incubator project being developed by the Next Generation Data Sharing Core will demonstrate the BioCatalyst platform on Weds June 23, 2021 at 10amPT/1pm ET.

Published: Jun 08, 2021

Life Course Research Visual Toolkit

Life course research embraces the complexity of health and disease development, tackling the extensive interactions between genetics and the environment over a lifetime.

Published: Apr 28, 2021

Great Plains Interoperability Conference 2021

Interoperability & FHIR at University of Nebraska - May 11 & 12 - 8:30 am - 12:30 pm CT

Published: Apr 14, 2021

Melissa A. Haendel joins CU Anschutz as Chief Research Informatics Officer

Melissa A. Haendel, PhD, has been named Chief Research Informatics Officer (CRIO) for the University of Colorado Anschutz Medical Campus!

Published: Mar 05, 2021

The National COVID Cohort Collaborative: Clinical Characterization and Early Severity Prediction

This multi-center dataset supports robust evidence-based development of predictive and diagnostic tools and informs critical care and policy.

Published: Feb 15, 2021

Penn State CTSI Team Science Toolbox

Penn State recently released a new resource that is available to all CTSA Program hubs. Our Team Science Toolbox features evidence-based techniques for all stages of team development and was created with the non-team scientist in mind.

Published: Feb 10, 2021

Using National COVID Cohort Collaborative (N3C) Data to Inform your Protocol Development

Trial Innovation Network (TIN) collaboration webinar Feb 1st, 2021 - Overview and update on the status of N3C, followed by presentations from 3 of the N3C Domain Teams on how they can inform clinical trial protocol development.

Published: Jan 26, 2021

NIH COVID-19 NeuroDatabank and NeuroBioBank

NeuroCOVID creates and maintains a national resource for documenting and studying neurological complications of coronavirus disease (COVID-19), the illness caused by infection with the SARS-CoV-2 novel coronavirus.

Published: Jan 25, 2021

Access the AMIA 2020 Digital Collection

With the AMIA 2020 fall meeting behind us, you still have the opportunity to continue your informatics professional development and learning. We have packaged the most content ever obtained from an AMIA Annual Symposium.

Published: Jan 05, 2021

NCATS Announcement: Access to the COVID-19 Data Analytics Platform Is Open

A powerful tool for researchers! Having access to a centralized enclave of this magnitude allows research teams to study, probe and answer clinically important questions about COVID-19 that they could not have answered previously.

Published: Dec 22, 2020

I Am Translational Science

In this new video series, hear from researchers at NIH and beyond on how Translational Science is speeding the identification and development of diagnostic and treatment approaches.

Published: Oct 23, 2020

Stablizing, Improving and Evolving Research Informatics: Update from the Office of the CRIO

View the presentation of the CD2H & N3C at time codes 21:38 - 24:17.

Published: Oct 19, 2020

New REDCap Wiki at OHSU

Are you a REDCap user? Check out OCTRI's REDCap wiki—a new tool with how-to guides, helpful tips, videos, and more. New content will be added on a regular basis.

Published: Sep 25, 2020

Hacktoberfest 2020!

Hacktoberfest Contributor's Guide: How To Find and Contribute to Open-Source Projects

Published: Sep 18, 2020

The N3C Data Enclave is Open for Research!

The goal of the N3C is to systematically collect, harmonize, and make available patient data from healthcare providers nationwide to accelerate advances in COVID-19 clinical care.

Published: Sep 04, 2020

CD2H Onboarding/Registration Form has been updated!

The old version of the registration/onboarding form has officially been deprecated and now replaced with this new form. Become a member now to engage with CD2H!

Published: Aug 31, 2020

International Rare Disease Consortium

The aim is to produce a standard machine-readable format that will be based on existing ontologies. Please RSVP to fjeanson@yahoo.com to be invited to the first bi-weekly meeting of this group.

Published: Aug 21, 2020

Artificial Intelligence: New Horizons in Medicine

Don't miss this virtual event from Government CIO Media & Research! Thursday August 13th 8:00 am PT/11:00 am ET.

Published: Aug 12, 2020

Notice of Special Interest (NOSI): Emergency Competitive Revisions for Social, Ethical, and Behavioral Implications (SEBI) on COVID-19 Testing among Underserved and/or Vulnerable Populations

The overarching goal is to understand factors that have led to disproportionate burden of the pandemic on these underserved populations so that interventions can be implemented to decrease these disparities.

Published: Aug 04, 2020

Notice of Special Interest (NOSI): Accelerating Clinical Care and Research through the Use of the United States Core Data for Interoperability (USCDI)

The USCDI will facilitate the use of clinical data in research studies and enable greater consistency in clinical research data that are shared.

Published: Jul 30, 2020

CD2H & N3C's Dr. Philip Payne has been named Washington University in St. Louis School of Medicine's Chief Data Scientist

Philip R.O. Payne, PhD, director of the Institute for Informatics at Washington University School of Medicine in St. Louis, has been named associate dean for health information and data science, and chief data scientist for the School of Medicine.

Published: Jul 29, 2020

Researchers try unprecedented data sharing and cooperation to understand COVID-19

N3C leaders Melissa Haendel, PhD and Chris Chute, MD, DrPH along with Andrew Chan, MD and Stephen Hewitt, MD talk about Big Data and Collaboration to fight COVID-19. Read the article!

Published: Jul 24, 2020

NCATS Accepting Applications for CTSAProgram-Supported COVID-19 Research

Notice of Special Interest (NOSI) NOT-TR-20-011 is ongoing through July 10, 2021 - Apply for funding today to advance the translation of research findings into diagnostics, therapeutics, and vaccines!

Published: Jul 16, 2020

Special Issue on Novel Informatics Approaches to COVID-19 Research

Investigators are encouraged to submit clear and detailed descriptions of their novel COVID-19 methodological results. Submissions for the November issue of the Journal of Biomedical Informatics are due by October 15, 2020.

Published: Jul 01, 2020

Now Available: LOINC version 2.68 and RELMA version 7.1

10 New LOINC Codes - Updated 06-26-2020

Published: Jun 29, 2020

Scripps Research N3C Press Release

Scripps Research joins national effort to develop medical record analytics to improve COVID-19 patient outcomes

Published: Jun 26, 2020

Call for Participation for the AMIA 2021 Informatics Summit

The Call for Participation for the AMIA 2021 Informatics Summit is heating up! AMIA is looking for submissions describing the latest innovations you are creating in Bioinformatics, CRI, Informatics Implementation, & Data Science. Submissions due August 13

Published: Jun 26, 2020

CNN News: NIH launches national database to collect medical information from Covid-19 patients

“This effort aims to transform clinical information into knowledge urgently needed to study COVID-19, including health risk factors that indicate better or worse outcomes of the disease, and identify potentially effective treatments,”

Published: Jun 17, 2020

COVID-19 Pandemic Response, Laboratory Data Reporting: CARES Act Section 18115

Assuring a rapid and thorough public health response to the COVID-19 pandemic necessitates complete and comprehensive laboratory testing data.

Published: Jun 16, 2020

Press Release: NIH launches analytics platform to harness nationwide COVID-19 patient data to speed treatments

The National Institutes of Health has launched a centralized, secure enclave to store and study vast amounts of medical record data from people diagnosed with coronavirus disease across the country.

Published: Jun 15, 2020

NCATS Rare Diseases Are Not Rare! 2020 Challenge Details

NCATS is seeking creative approaches to raising awareness about Rare Diseases. Deadline extended; submit your entry by 6/15/2020.

Published: Jun 12, 2020

NIH launches preprint pilot to expand discovery of NIH-funded research

The NIH Preprint Pilot, a project of NIH’s National Library of Medicine (NLM), is intended to increase early discoverability of NIH-supported research results, maximizing the possible impact of the research.

Published: Jun 12, 2020

IMO releases open source terminology and value set data package for COVID-19

Given the rapid spread of COVID-19, the need to accurately document new cases of the coronavirus, and analyze and share patient data, is critical to patients, their communities, and the healthcare professionals who serve them.

Published: Jun 11, 2020

Key Dates for HHS’ Interoperability Final Rule Implementation

View ONC's Cures Act Final Rule timeline to help you stay on track as you work to adopt new technologies to meet these regulations.

Published: Jun 09, 2020

Call for Papers: JCTS Special Issue on Team Science

The Journal of Clinical and Translational Science recently announced a call for submissions for a special themed issue focused on the Design, Development, Evaluation, and Dissemination of Team Science Interventions in Clinical and Translational Research.

Published: Jun 09, 2020

The COVID-19 Research Database

The COVID-19 research database enables public health and policy researchers to use real-world data to better understand and combat the COVID-19 pandemic.

Published: Jun 05, 2020

FDA publishes validation data from 5 more COVID-19 antibody tests, both authorized and not

The FDA published a new set of validation data from five additional coronavirus antibody tests, including diagnostics that have received federal authorizations and some that have since been removed from public sale.

Published: Jun 05, 2020

Lancet, New England Journal retract Covid-19 studies, including one that raised safety concerns about malaria drugs

The Lancet, one of the world’s top medical journals, retracted an influential study that raised alarms about the safety of the experimental Covid-19 treatments chloroquine and hydroxychloroquine amid scrutiny of the data underlying the paper.

Published: Jun 04, 2020

NIH Preprint Pilot in PubMed Central

National Library of Medicine (NLM) is preparing to launch a pilot project to test the viability of making preprints resulting from NIH-funded research available via PubMed Central (PMC).

Published: Jun 01, 2020

Creating the data platforms needed to guide our response to COVID-19

NCATS is an integrator, bringing together diverse people, technologies, and information to produce insights and advances that no one could do alone.

Published: May 29, 2020

Gathering big data to accelerate the COVID-19 fight

Scientists creating secure, central database of electronic health records from coronavirus patients

Published: May 26, 2020

The COVID-19 Host Genetics Initiative

The COVID-19 host genetics initiative brings together the human genetics community to generate, share, and analyze data to learn the genetic determinants of COVID-19 susceptibility, severity, and outcomes.

Published: May 21, 2020

Researchers can join forces with COVID-19 Collaboration Platform

We can find effective treatments for COVID-19 much faster by sharing protocols for randomized clinical trials. This platform is a home for RCT protocols that are available for collaboration.

Published: May 18, 2020

Calling all scientists: Experts volunteer for virus fight

“Scientists are a tremendous resource for this country, and it’s not something that should just be confined to the coasts,” Michael Wells said. “It’s something that everyone should be able to benefit from.”

Published: May 10, 2020

COVID-19 EHR DREAM Challenge

Due to the emergent need for better understanding of COVID-19 and the development of patient-specific clinical risk scores and early warning tools, CD2H has developed a platform to support analytic and machine learning hypotheses on clinical data.

Published: May 10, 2020

Wicker, Thune, Moran, Blackburn Announce Plans to Introduce Data Privacy Bill

The COVID-19 Consumer Data Protection Act would provide all Americans with more transparency, choice, and control over the collection and use of their personal health, geolocation, and proximity data.

Published: Apr 30, 2020

Associate Director of Library Operations at National Library of Medicine

Be part of the National Library of Medicine (NLM) future.

Published: Apr 27, 2020

National COVID Cohort Collaborative to Create Harmonized Clinical Data Portal

Cloud-based N3C will accept data via multiple data models and transform them into a common analytic model for research

Published: Apr 27, 2020

Major health-record company drops opposition to federal data-sharing rule

Epic dropping opposition to a federal rule designed to improve patients’ access to their medical records, removing a potential barrier to its implementation.

Published: Apr 23, 2020

NCATS Seeks Applications to Advance COVID-19 Research

NCATS recently issued two Notices of Special Interest that highlight the urgent need for research on the 2019 novel coronavirus (SARS-CoV-2) and the disease it causes, 2019 novel Coronavirus Disease (COVID-19).

Published: Apr 15, 2020

AMIA Coronovirus Resource Center

AMIA is committed to providing guidance and updates on COVID-19 for the informatics community with data resources, weekly webinars, and literature publications.

Published: Apr 07, 2020

Announcing The National COVID Cohort Collaborative (N3C)

In collaboration with several NIH institutes and distributed clinical data networks, CD2H has created the National COVID Cohort Collaborative (N3C), a centralized, secure, limited access portal to access COVID-19 clinical data.

Published: Apr 03, 2020

VUMC Software for COVID-19 Tracking

REDCap has found widespread use in the public health response to the COVID-19 pandemic.

Published: Mar 25, 2020

Call to Action to the Tech Community on New Machine Readable COVID-19 Dataset

The nation's artificial intelligence experts are to develop new text and data mining techniques that can help the science community answer high-priority scientific questions related to COVID-19.

Published: Mar 16, 2020

March 25th deadline to submit public feedback for 2021-2025 NIH-Wide Strategic Plan

Your input is vital to ensuring that the NIH-Wide Strategic Plan for Fiscal Years 2021–2025 sets forth biomedical research on a promising and visionary path.

Published: Mar 16, 2020

NIH Seeking Experienced Data/Computer Scientists & Engineers for DATA Scholar Program

NIH’s Office of Data Science Strategy (ODSS) has one- to two-year positions open in the Data and Technology Advancement (DATA) National Service Scholar Program.

Published: Mar 13, 2020

ONC Final Rule on Use of EHR Data

The Office of the National Coordinator (ONC) for Health Information Technology has published the final rule intended to move the health care ecosystem in the direction of interoperability to improve quality and accessibility of information.

Published: Mar 11, 2020

Job opportunity: Evaluation & Analysis team at PCORI

The Patient-Centered Outcomes Research Institute is hiring for a Program Officer (senior roles available) for Evaluation & Analysis.

Published: Feb 25, 2020

Request for Information (RFI): FY 2021-2025 Strategic Plan for the Office of Research Infrastructure Programs: Division of Comparative Medicine and Division of Construction and Instruments Programs.

This RFI invites feedback on the scope of its programs and possible future directions to maximize the benefits of those programs.

Published: Feb 11, 2020

NIH Virtual Workshop on Data Metrics, Feb. 19, 2020, 9:00 AM-3:30 PM EST

The National Institutes of Health’s Office of Data Science Strategy will host a virtual workshop on assessing dataset and data resource value and reach.

Published: Jan 30, 2020

Draft Federal Health IT Strategic Plan Supports Patient Access to Their Own Health Information

The U.S. Department of Health and Human Services (HHS) released the draft 2020-2025 Federal Health IT Strategic Plan for public comment.

Published: Jan 30, 2020

NIH to Host Workshop on Role of Generalist Repositories to Enhance Data Discoverability and Reuse Feb. 11-12 in Bethesda, Md.

The Office of Data Science Strategy at the National Institutes of Health and the National Library of Medicine are hosting a workshop (link is external) on the Role of Generalist Repositories to Enhance Data Discoverability and Reuse on Feb. 11-12.

Published: Jan 30, 2020

Request for Public Comment on Draft Desirable Characteristics of Repositories for Managing and Sharing Data Resulting From Federally Funded Research

The White House Office of Science and Technology Policy is seeking public comments on a draft set of desirable characteristics of data repositories used to locate, manage, share, and use data resulting from Federally funded research.

Published: Jan 30, 2020

CLIC Website Virtual Tour Q/A Session - Part 1 - Wednesday, February 5, 2020 1:00 - 2:00 pm ET

The CLIC Virtual Tour is designed to give everyone involved with the CTSA Program, regardless of in what capacity, an overview of what CLIC provides and how to make it work for you.

Published: Jan 30, 2020

2019 Idea Competition Winner Announced!

We are very pleased to announce the winner of the 2019 Idea Competition: University of Alabama, Birmingham “Automated Scoring of Radiographic Damage in Rheumatoid Arthritis” (PI S. Louis Bridges).

Published: Jan 30, 2020

CD2H Phase III: Request for Project Proposals

CD2H is seeking community project proposals for which we can offer development support, help initialize and support larger funding proposals, or otherwise consult with CTSA hubs on their collaborative informatics efforts.

Published: Dec 06, 2019

CD2H Show and Tell: DREAM Challenge Opportunities for the CTSA Program

This Show and Tell will feature DREAM Challenges and highlight how the CD2H is bringing this successful model to the CTSA Community.

Published: Jan 04, 2019

CD2H Newsletter: November/December 2018

CD2H Dec 2018 Newsletter Now Available

Published: Nov 05, 2018

CD2H Newsletter: October 2018

CD2H Oct 2018 Newsletter Now Available

Published: Oct 17, 2018

CD2H Newsletter: September 2018

CD2H Sep 2018 Newsletter Now Available